Links to self help, support and social action groups and organisations.
A
- Acoustic Neuroma Association of Australasia – www.anaa.org.au
- Action on Disability Within Ethnic Communities – ADEC – www.adec.org.au
- Adult ADHD Melbourne – http://adhdsupport.org.au
- Alternative Law Journal – www.altlj.org
- Angelman support group – www.angelmansyndrome.org
- Animals Australia – www.animalsaustralia.org
- Anne McDonald Centre (Formerly known as DEAL Communication Centre) – www.annemcdonaldcentre.org.au
- ANTaR – www.antarvictoria.org.au and www.antar.org.au
- Anti-Slavery Society – www.childlabor.net
- Anxiety Disorders Association of Victoria – www.adavic.org.au
- Anxiety Recovery Centre Victoria – www.arcvic.com.au
- Aspergers Victoria – https://aspergersvic.org.au
- Association For Children With A Disability – www.acd.org.au
- Association of Relinquishing Mothers (ARMS) – www.armsvic.org.au
- Asthma Victoria – www.asthma.org.au
- Aussie Hands Foundation – www.aussiehands.org
- ausEE (support for EGID or EoE) – www.ausee.org
- Asylum Seeker Resource Centre – www.asrc.org.au
- Australian Breastfeeding Association – www.breastfeeding.asn.au
- Australian Chemical Trauma Alliance – www.ozemail.com.au/~actall
- Australian Community Gardens Network – communitygarden.org.au
- Australian Conservation Foundation – www.acfonline.org.au
- Australian Multiple Birth Assoc Vic Branch – AMBA www.amba.org.au
B - Barwon Disability Resource Council – www.bdrc.org.au
- Brain Injury Matters – www.braininjurymatters.org
- Better Health Channel – www.betterhealth.vic.gov.au
- Better Hearing Aust – www.betterhearing.org.au
- Bicycle Victoria – www.bicyclenetwork.com.au
- Blepharospasm Support Group – www.eyeandear.org.au
- Blind Citizens Aust – www.bca.org.au
- Boite – www.boite.com.au
- Borderlands Co-operative – www.borderlands.org.au
- BrianLink – www.brainlink.org.au
- Broken Rites (Aus) Collective – www.brokenrites.org.au/drupal
- Bronchiectasis Chat Group – bronchiectasis-subscribe@yahoogroups.com
C - Camp Eureka – campeureka.org.au
- Cancer Council – Support Groups – www.cancervic.org.au
- CANTEEN – www.canteen.org.au
- Centres Against Sexual Assault – www.casa.org.au
- Cardio Facio Cutaneous Syndrome Family Network – www.cfcsyndrome.org
- Cardiomyopathy Association of Australia – www.cmaa.org.au
- Cerebral Palsy Support Network – www.cpsn.org.au
- CERES Community Environment Park – www.ceres.org.au
- Charcot Marie Tooth Assoc Australia – Vic – www.cmt.org.au
- CHARGE – www.chargesyndrome.org.au
- Child Wise – www.ecpat.org
- Chinese Mental Health Self Help Group – www.adec.org.au
- Choose Cruelty Free- www. choosecrueltyfree .org.au
- Chronic Illness Alliance – www.chronicillness.org.au
- Chronic Pain Australia – www.chronicpainaustralia.org.au
- Coalition Against Duck Shooting – www.duck.org.au
- CoDA Australasia – www.codependentsanonymous.org.au
- Coeliac Society of Aust – Vic – www.coeliac.org.au
- Commonground Melbourne/ Groupwork Institute of Australia –
www.groupwork.com.au - Communication Rights Australia – www.communicationrights.org.au
- Community Child Care Vic – www.cccinc.org.au and www.ausccs.org.au
- Compassionate Friends Bereaved Parents Centre – www.compassionatefriendsvictoria.org.au
- Conflict Resolution Network (NSW) – www.crnhq.org
- Congenital Adrenal Hyperplasia Support Group – www.cah.org.au
- CDH Australia (formerly CHERUBS Australia) http://cdh.org.au
- Costello Syndrome International Support Group email – bence@midcoast.com.au
- Council On The Ageing – www.cota.org.au
- Country AIDS Network (Vic) Inc – can@can.org.au
- Cri Du Chat Support Group Aust – https://criduchat.org.au/
- Crohn’s and Colitis Australia – www.gsnv.org.au
- Cutis Laxa Internationale – www.cutislaxa.org/en/
- Cystic Fibrosis Support Groups – www.cfcc.org.au/page/106/support-groups
D - Deaf Victoria – www.deafvictoria.org.au
- Dementia Australia – www.dementia.org.au
- Diabetes Australia – Diabetes Community Network – www.diabetesvic.org.au
- Disability Advocacy & Information Service (Wodonga) –
www.disability-advocacy.com.au - Domestic Violence & Incest Resource Centre – www.dvirc.org.au
- Down Syndrome Association of Victoria – www.downsyndrome.org.au/vic/
- Dying With Dignity Victoria – www.dwdv.org.au/
- Dystrophic Epidermolysis Bullosa Research Assoc Aust. (DEBRAA Vic) – www.debra.org.au
E - Eating Disorders Foundation of Victoria – www.eatingdisorders.org.au
- Emerge Australia (ME/CFS Chronic Fatigue Syndrome) – https://emerge.org.au
- Endometriosis Assoc Vic – www.endometriosis.org.au
- Environment Victoria – www.envict.org.au
- Epilepsy Foundation – https://www.epilepsyfoundation.org.au
F - FACTS Food Anaphylactic Children Training & Support – https://allergyfacts.org.au
- Family Drug and Gambling Help – https://www.sharc.org.au/sharc-programs/family-drug-gambling-help/
- Free West Papua Campaign – www.freewestpapua.org
- Friends Of the Earth – FOE – www.melbourne.foe.org.au
G - Gay & Lesbian Switchboard – http://www.switchboard.org.au
- Geelong Bipolar Support Group – www.bipolarlife.org.au/geelong/
- Genetic Support Network of Victoria – www.gsnv.org.au
- Goongerah Environment Centre – GECO – www.geco.org.au
- Green Left Weekly – www.greenleft.org.au
- Greenpeace – www.greenpeace.org.au
H - Haemophilia Foundation Vic – http://www.hfv.org.au
- Harm Reduction Victoria – www.hrvic.org.au
- Health Issues Centre – www.healthissuescentre.org.au
- HEARTKIDS Vic – www.heartkids.org.au
- Hepatitis Victoria (now LiverWELL) – https://liverwell.org.au/
- Histiocytosis Association of America – www.histio.org
- Home Education Network – www.home-ed.vic.edu.au
- Huntington’s Victoria – www.huntingtonsvic.org.au
I - Incontinentia Pigmenti International Foundation (USA) – http://www.ipif.org
- Inflamatory Neuropathy Support Group – https://www.ingroup.org.au
- Irritable Bowel Information & Support Assoc – IBIS – http://www.ibis-australia.org/
J - Jewish Voice for Peace – https://jewishvoiceforpeace.org
- Justice for Refugees – www.facebook.com/J4RVic/
K - Kooriweb Network – www.kooriweb.org (link to Aboriginal Health Centre)
L - Laughter Clubs Victoria – http://www.laughterclubsvic.org
- Lawstuff (Young People’s Rights) www.lawstuff.org.au
- Lead Group Inc (NSW) – www.lead.org.au
- Leadership Plus Inc. (formerly Action for Community Living) www.leadershipplus.com
- Liberty – www.libertyvictoria.org.au
- LiverWELL (Hepatitis Victoria) – https://liverwell.org.au/
- Low Vision Groups – Vision Australia – https://visionaustralia.org
- Lung Foundation Australia – https://lungfoundation.com.au
- Lymphoedema Association Australia – www.lymphaustralia.org.au/
Living with Lymphoedema – Facebook support group www.facebook.com/groups/376043549464562
M - Meningitis Centre – www.meningitis.com.au
- Mental Illness Fellowship (now known as Wellways) – www.wellways.org
www.mentallyhealthy.com – a site for anyone who has used Mental Health Services, especially in the western suburbs - Mindworks Geelong – www.mindworksgeelong.org.au
- Mood Disorders Support Group – www.mentalhealthvic.org.au
- Motor Neurone Disease Association of Vic – www.mnd.asn.au
- Mucopolysaccharide & Related Diseases Society Aust Ltd – www.mpssociety.org.au
- Muscular Dystrophy Association Inc – www.mda.org.au
- Musculoskeletal Australia – www.msk.org.au
N - Narcotics Anonymous – NA – www.navic.net.au
- National Network of Adult & Adolescent Children Who have Mentally Ill Parent(s) – NNAAMI – www.nnaami.org
- New International Bookshop Collective – www.nibs.org.au
- NODSS – Narcolepsy & Overwhelming Daytime Sleep Society Aust –
www.nodss.org.au - NORD – National Organisation for Rare Disorders (USA) – www.rarediseases.org
O - One Hundred & One Ways of Communicating – www.expression.com.au
- Osteogenesis Imperfecta Society of Australia – http://www.oiaustralia.org.au
- Otway Ranges Environment Network – www.oren.org.au
- Ovarian Cancer Australia – https://ovariancancer.net.au
- Overeaters Anonymous – www.oa.org.au
P - Parent Support Groups – Moira – Southern Region – www.moira.org.au
- Parents Jury – www.parentsjury.org.au
- PARKINSON’S Victoria – http://www.parkinsonsvic.org.au
- Peace Brigades International – www.peacebrigades.org
- People With Multiple Sclerosis – Vic – www.msaustralia.org.au
- Pink Disease Support Group – http://www.pinkdisease.org
- Playgroup Victoria – www.playgroup.org.au
- Polio Network Victoria – www.independenceaustralia.com
- Porphyria Association Inc. – www.porphyria-australia.org
- Port Phillip ECOCentre – www.ecocentre.com
- Positive Women – www.positivewomen.org.au
- Post & Ante Natal Depression Association (PANDA) – www.panda.org.au
- Prader Willi Syndrome Assoc Vic – www.pws.asn.au
- Primary Biliary Cirrhosis (Facebook Group) – https://www.facebook.com/groups/AustralianPBCers/
- Primary Biliary Cirrhosis (Yahoo Group) – https://au.groups.yahoo.com/neo/groups/PBCsupportaustralia/info
- Pt’chang Nonviolent Community Safety Group (group no longer active but continues to have useful information on website) – www.ptchang.org
- Public Transport Users Assoc – www.ptua.org.au
R
- Radical Women – www.socialism.com
- Rare Voices Australia – www.rarevoices.org.au
- Reconciliation Australia www.reconciliation.org.au
- Refugee Action Collective – www.rac-vic.org
- Refugees Survivors and Ex-Detainees (RISE) www.riserefugee.org
- Regional Disability Advocacy Service – www.rdas.org.au
- Residential Care Rights – www.vic.agedrights.asn.au
- Resourcing Health & Education in the Sex Industry – www.sexworker.org.au
- Road Trauma Support Team – http://www.rtssv.org.au
- Rosacea Support (Internet Group) – rosacea-support.org
- Ross House – www.rosshouse.org.au
- RSI & Overuse Injury Assoc ACT – www.rsi.org.au
S - SANDS (miscarriage, stillbirth, and newborn death support) – www.sands.org.au
- Save Albert Park – www.savealbertpark.org
- Scleroderma Victoria (formerly Scleroderma Foundation of Victoria Inc) – http://www.sclerodermavictoria.com.au
- Seahorse Club of Victoria – www.seahorsevic.com.au
- Seed Savers Network (NSW) – www.seedsavers.net
- Self Advocacy Resource Unit ( SARU) – www.saru.net.au
- Self Help Addiction Resource Centre Inc – SHARC – www.sharc.org.au
- Sexaholics Anonymous – https://saoz.net
- Short Statured People of Australia – www.sspa.org.au
- Social Security Rights Victoria – SSRV http://www.ssrv.org.au
- SPELD Parents’ Support Group – www.speldvic.org.au
- STAR Vic – www.starvictoria.org.au
- Stepfamily Assoc – www.stepfamily.org.au
- Stroke Assoc Vic – www.strokeassociation.com.au
- Sudden Infant Death Research Foundation – www.sidsandkidsvic.org
- Supporting Aussie Kids with Kabuki Syndrome – www.sakks.org
- Survivors on the Net – Australia – www.survivors.org.au
- SWAN – Syndromes Without a Name – UK – www.undiagnosed.org.uk
T - Tenants’ Union of Vic – www.tuv.org.au
- The Australian Reflex Sympathetic Dystrophy Support Group –
http://www.ozrsd.org - The Chromosome 18 Registry&Research Society Aust – www.chromosome18.org
- Thyroid Australia – www.thyroid.org.au
- Tough Love – http://www.toughlove.org.au
- Tourette Syndrome Association – https://tourette.org.au
- Trigeminal Neuralgia Association – Sydney – www.tnaaustralia.org.au
U - Union of Australian Women (Vic) – www.uaw.org.au
- Unique in Australia – http://www.rarechromo.org
V - VANISH Inc – www.vanish.org.au
- 22q (Velo Cardio Facial Foundation) – www.22q.org.au
- Victorian Mental Illness Awareness Council – VMIAC – http://www.vmiac.org.au
- Victorian Speak Easy Association – www.speakeasy.org.au
- Victorian Turner’s Syndrome Assoc – www.turnersyndrome.org.au
W - Wegener Granulomatosis Support Group – wally.v@wegenersaustralia.com
- Wellways – www.wellways.org
- Whirled Foundation (formerly MENIERE’S Support Group Vic) www.menieres.org.au
- Wilderness Society – www.wilderness.org.au
- Williams Syndrome Family Support Group Vic Inc – www.wsfsgvic.org.au
- Women With Disabilities Australia – www.wwda.org.au
- Women’s Health Victoria – www.whv.org.au
- Women’s Information & Referral Exchange – WIRE www.wire.org.au
- Women’s International League for Peace & Freedom –
www.wilpf.org.au - Women’s Resource Information & Support Centre – Ballarat –
http://www.wrisc.org.au - Women’s Web – www.womensweb.com.au
- Workover – An internet group for injured workers in Victoria – http://au.groups.yahoo.com/group/workover
- WWOOF – Willing Workers On Organic Farms (Aust) – www.wwoof.com.au
Y - Youth Disability Advocacy Service (YDAS) – www.ydas.org.au
If you find any links that don’t work or you have any updates, please contact us at info@coshg.org.au